End Stage Diseases and End of Life from Fran Hoh & Nancy Joyner

Harold’s story and other case studies will provide examples of amazing opportunities that can be experienced when caring for parents dealing with end stage diseases. Caring for patients with end stage disease requires extreme sensitivity, deep compassion, and extraordinary knowledge. In order to deliver expert, holistic care, healthcare professionals need to be knowledgeable of new interventions to promote quality of life for patients with all types of disease processes. To add to the challenge, each particular end stage disease has unique complexities for the patient, the family and the healthcare professional.

Very little has been written about end stage liver disease. Many texts do not mention it at all. Did you know that a patient seeking a liver transplant can be on hospice care while waiting? We will discuss how this is done. What can we do about patients with COPD who have no solution for exacerbations except to come to the emergency department, or go to ICU? One medical director has an excellent intervention for this. It’s time to think out of the box more than we ever have as providers. We will discuss a patient named Adele, who had ovarian cancer for 10 years, was in the final stage, but had a list of 20 items that all had to be “fixed” before she died. The team did a wonderful job helping her obtain peace. It only took a pencil, a yellow pad of paper, and dedicated friends. Find out how the team rallied to help carry out her final wishes! What can we do to keep costs down…yet assist the patient with symptoms experienced? Come learn about the latest strategies that have been proven successful in practice. You are guaranteed to leave with new tools that you can put to use when a cure is not possible, yet quality support and care most definitely are.

This important topic is seldom taught in medical or nursing school, yet the death rate on our planet is 100%! How, then, is the most supportive end of life care learned today? The answer is through the knowledge and experiences shared by those who have been at the bedsides of dying patients. Your experienced clinician for this one-day educational event, Fran Hoh, PhD, APN, CS, ACHPN, has mentored and educated many patients, family members and healthcare colleagues. She will provide you with concrete strategies to identify patients for whom aggressive therapy is not appropriate, tips to have conversations that address realistic and anticipated goals for care, and the latest when it comes to managing symptoms effectively, specifically pain.

Each end of life patient trusted to your care deserves your compassionate commitment to accompany them well on the final journey of their life.

NANCY E. JOYNER, RN, MS, APRN-CNS, ACHPN®

Nancy E. Joyner is a palliative care nurse consultant, speaker, educator and author. Nancy extensive experience caring for patients with end stage disease through hospice and acute care roles (including critical care, cancer units, dialysis, emergency departments, and medical/surgical units). Her commitment to the specialty is seen through furthering her education to become a palliative care Clinical Nurse Specialist, certification as an Advanced Certified Hospice and Palliative Care Nurse and serving as an active member on the Hospice and Palliative Nursing (HPNA)’s Professional Development Council.

Nancy has shared her passionate insights at the local, state, and national levels. She is an ELNEC (End-of-Life Nursing Education Consortium) trained presenter and has taught the national advance NBCHPN certification review course, as well as having shared her insights as an online palliative care faculty member for the University of North Dakota. She recognizes that caring for those with end stage disease (and their families) requires extreme compassion, expert communication skills, and extraordinary knowledge. You are guaranteed to learn from Nancy’s expertise to provide the highest level of quality care for patients in your care facing serious end stage illness.

Speaker Disclosures:
Financial: Nancy E. Joyner is CEO and President of Nancy Joyner Consulting, P.C. She receives a speaking honorarium from PESI, Inc.
Non-financial: Nancy E. Joyner has no relevant nonfinancial relationships to disclose.

FRANCINE HOH, PHD, APN, CS, ACHPN

Fran Hoh is an advanced practice nurse who is passionate about end of life care. As such, her doctorate in health administration allowed her to focus her dissertation work on pain management. She currently practices in a hospital as the manager of the inpatient pain service, where she instituted the pain resource nurse program. In this role, Dr. Hoh has been responsible for educating hundreds of nurses to successfully advocate for improved patient pain management. Additionally, she has her own practice, Always Think Comfort, in which she provides palliative care services to patients in long term care facilities, with the goal of preventing unplanned and unnecessary hospitalizations.

As one of the first trained ELNEC (End of Life Nursing Education Consortium) Trainers, Fran has trained nurses around the country in holistic end of life care. She presented the full day ELNEC course as a preconference at the national ASPMN (American Society of Pain Management Nurses) annual meeting for several years.

She currently holds three national certifications, including: pain management, advanced practice nurse in hospice and palliative care, and as a clinical nurse specialist in adult nursing. Fran has received recognition for her numerous contributions: she received the Clinical Nurse of the Year award from the American Society of Pain Management Nurses and the Nurse Excellence Award from Overlook Hospital. As a published author and respected national presenter, she has a wealth of knowledge to share from her vast clinical experiences caring for end of life patients.

Disclosures:
Financial: Fran Hoh is receiving a fee for speaking at this educational activity. Fran is on the speaker’s bureau for Cadence Pharmaceutical. She receives royalties for Pain Medications and You and A Comprehensive guide to survive and thrive through PESI Publishing and Media.
Nonfinancial: Fran Hoh has no relevant nonfinancial relationships to disclose.